Dear Madison Clinic families,
We know that times are challenging right now as we are all sheltering in place and keeping aware of the coronavirus pandemic. At the Madison Clinic, our research on ways to help people living with diabetes, and their families, continues. Now, more than ever, it is important for us to understand your experiences and feelings about diabetes and management, whether that is for you as a person living with diabetes, or as a family member or caregiver who is caring for a child with diabetes.
Right now, we have three different remote research opportunities that are actively recruiting.
All of these studies are electronic surveys and can be completed in your own home, on your own time. All studies are focused on understanding the experience of you or your child in managing diabetes, and each should take less than 30 minutes of your time. Please read on to find out more about the details of each study, the types of participants the study is recruiting, and who you can contact for more details. Thank you for your generous time in advancing our knowledge of caring for children and young adults with diabetes.
Study 1: Perspectives on Insulin Delivery Systems by Caregivers of Children with Type 1 Diabetes (T1D)
For whom? Children 6-17 years old with type 1 diabetes for more than 3 months using any mode of insulin delivery.
Description: This study asks about how families living with type 1 diabetes feel about their diabetes management. It will take about 15 minutes to complete. If your child is between 13-17 years old, they'll also be asked to complete their own survey, if they would like.
For more information, please email Fatema Abdulhussein, MD, at [email protected]
Study 2: The Relationship between Diabetes Technology Use and Glycemic Outcomes in Pediatric Type 1 Diabetes Patients
For whom? Adolescents 12-17 years old with type 1 diabetes for more than one year, AND his/her parent or primary caregiver.
Description: This study looks at characteristics of the individual, family, community, and health care system and their effects on diabetes technology use, and ultimately how they relate to glycemic outcomes in adolescents with type 1 diabetes.
For more information, please email Jenny Min, MSN, RN, CPNP-PC, at [email protected]
Study 3: Type 1 Diabetes Patient Preference Survey Study
For whom? Adults 18 years old and older with type 1 diabetes, who have experienced severe hypoglycemia.
Description: This study measures patient preferences about islet cell transfusions. You will be asked to complete a series of questions online regarding your background, current treatments, and treatment preferences. The entire survey takes about 30-45 minutes to complete, and each patient who completes it will receive $20 compensation.